11:45 – 12:05 The French Health Data Hub & the European Health Data Space
Our societies are becoming more and more digital. Data is now the basic assets required to provide more personalised, predictive, preventive and participatory healthcare and medicine. We also have seen recently the critical role of data in the management of a pandemic. But we observe a lack of fluidity for data sharing and data exploitation due to multiple challenges such as cooperation between stakeholders and data silos, interoperability and locked-in phenomenon, clear governance models. etc.. Between the needs for data availability to develop innovations and better services and the needs for new regulations to ensure ethics and citizens' privacy protection and control over their personal data, this session will explore the way chosen by Europe to enable cross-border exchanges to unleash the power of data for care, policy-making and research.
12:05 – 13:05 Moving Towards OpenSource Data Platforms: Catalonia's New Strategy & Investment
Currently, in Catalonia there are a multiplicity of health information systems that share the function of monitoring patients through electronic medical records. This scenario has highlighted the existence of different models of clinical information, difficulties in achieving an agile and systemic deployment of innovations and an old-fashioned and unergonomic technology park.
However, in terms of digital health, locating the people in the care center demands that information systems having an architecture and a repository based on a careful and standardized clinical language. This element is key to contributing to a satisfactory experience of health professionals and citizens in all their interactions with the digital services of the health system, facilitating updates and innovations in the electronic health records.
This session will present the new digital health strategy of Catalonia, which is about to launch an investment of 40 million euros to develop a new model of information systems and Electronic Health Record based on the international and open standard openEHR.
Pol Perez Sust, Director of Information systems, Catalan Health Services
Jordi Piera, Director of digital health strategy, Catalan Health Services
Josep Vidal Alaball, Head of the Central Catalonia Primary Care Innovation and Research Unit, Institut Català de la Salut
Màrius Albert Gómez, Head of Sales, T-Systems Iberia
Francisco Lupiáñez-Villanueva, CEO, Open Evidence
Emilio J. Cortegoso Lobato, patient